Here are some of the latest health and medical news
developments, compiled by the editors of HealthDay:
Parents' Efforts Key to Approval of Drug for Rare Kidney
A new drug to treat a rare and deadly inherited kidney disorder
has been approved by the U.S. Food and Drug Administration, and the
efforts of one patient's parents may have played a key role.
The drug Procysbi is for nephropathic cystinosis. Left
untreated, the disease typically destroys the kidneys by age 10.
Even with a kidney transplant, the condition can lead to death by
The New York Timesreported.
Procysbi is not a totally new drug, but rather a more convenient
and tolerable version of an existing drug for cystinosis called
Cystagon, from Mylan Inc. Cystagon has a strong rotten-egg smell
that causes bad breath and body odor, and also causes nausea,
vomiting and other abdominal problems. It must be taken every six
Procysbi, from Raptor Pharmaceutical Corporation, has the same
active ingredient as Cystagon but can be taken every 12 hours and
parents say it causes less severe body odor, bad breath and
There is a huge price difference between the older and newer
medicines: Cystagon costs about $8,000 a year while Procysbi will
cost about $250,000 a year.
Still, reductions in the noxious side effects, and the
twice-a-day dosing of Procysbi are huge advantages for children
with nephropathic cystinosis, said Nancy Stack, a mother from
Corona del Mar, Calif.
Her daughter Natalie, 22, has the illness, and parents Nancy and
Geoffrey formed the Cystinosis Research Foundation in 2003 to help
push for better treatments. Money raised by the foundation was
instrumental in the development of Procysbi,
Now the challenge is to get Procysbi, with its high price tag,
covered by insurers. "It does seem extreme to have [the price] that
high," Stack told
The Times. "But as a community, our bottom line is getting
better treatment for our children. And we know that this will
change our kids' lives."
Ground Turkey Contains Potentially Harmful Bacteria: Report
Potentially dangerous bacteria was found in most samples of
randomly tested ground turkey products sold at U.S. stores, and
some of the bacteria were antibiotic-resistant,
Consumer Reportshas found.
The group also discovered that turkey raised without antibiotics
had much less antibiotic-resistant bacteria than turkey raised with
"Our findings strongly suggest that there is a direct
relationship between the routine use of antibiotics in animal
production and increased antibiotic resistance in bacteria on
ground turkey. It's very concerning that antibiotics fed to turkeys
are creating resistance to antibiotics used in human medicine," Dr.
Urvashi Rangan, director of the food safety and sustainability
Consumer Reports, said in a news release. "Humans don't
consume antibiotics every day to prevent disease and neither should
The group tested 257 kinds of raw ground turkey meat and patties
for five contaminants that can cause illness and be fatal in some
cases: enterococcus, E. coli, staphylococcus aureus, salmonella,
Ninety percent of the samples tested had at least one of the