Phantom limb syndrome is the perception of sensations, including pain, in a limb that has been amputated. People with this condition experience feelings in the limb as if it were still attached to their body. This is because the brain continues to receive messages from nerves that originally carried impulses from the missing limb.
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The exact cause of phantom limb syndrome is unknown. It is thought that the sensations are due to the brain’s attempt to reorganize sensory information following the amputation. The brain must essentially rewire itself to adjust to the changes in the body.
Phantom limb syndrome is more common in adults than in children. Other factors that may increase your chance of developing phantom limb syndrome include: Preamputation painA blood clot in the amputated limbPreamputation infectionPrevious damage to spinal cord or peripheral nerves that supplied the affected limbTraumatic amputationType of anesthesia used during the amputation
Symptoms may occur in people who have had a limb removed and people who are born without a limb. The symptoms are perceived in a limb that does not exist.
Phantom limb syndrome may cause sensations of: Shooting, stabbing, piercing, or burning painPleasureAn article of clothing or jewelryThe limb still being attached and functioning normallyNumbness, tickling, or cramping
Following an amputation, it is important to tell your doctor if you experience pain or other sensations. Earlier treatment generally improves the chances of success.
There is no medical test to diagnose phantom pain. You will be asked about your medical history. A physical exam will be done. The doctor will especially want to know about the signs, symptoms, and circumstances that occurred before and after the removal of the limb. Diagnosis can be made based on your symptoms of any sensations from the missing limb.
Fortunately, most cases of phantom limb syndrome following amputation are brief and infrequent. For those people who suffer from persistent pain, treatment can be challenging.
Your doctor may recommend the following to help with your symptoms such as: AntidepressantsAnticonvulsantsAntipsychoticsPrescription pain medicationMuscle relaxers
In some cases, electrical nerve stimulation may be used. Examples include: Transcutaneous electrical nerve stimulation (TENS)—a tiny electric current is sent through the skin to points on the nerve pathwayTranscranial magnetic stimulation—a strong magnetic pulse is sent through the scalp into the brainSpinal cord stimulation—an electrode is inserted and a small electric current is delivered to the spinal cord to relieve pain
Regional sympathectomy—a surgical procedure that interrupts selected nerves near the spinal cord affecting the perception of localized painMeditation and relaxation techniquesBiofeedbackHypnosisAcupunctureMassageExercise
To help reduce your chances of getting phantom limb syndrome, some believe that administering pain medication at the time of the amputation may prevent persistent pain afterward. The effectiveness of this approach has yet to be confirmed.
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Resources for pain management. Amputee Coalition website. Available at: http://www.amputee-coalition.org/limb-loss-resource-center/resources-for-pain-management/index.html. Accessed December 5, 2014.
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Last reviewed November 2015 by Michael Woods, MD
Please be aware that this information is provided to supplement the care provided by your physician. It is neither intended nor implied to be a substitute for professional medical advice. CALL YOUR HEALTHCARE PROVIDER IMMEDIATELY IF YOU THINK YOU MAY HAVE A MEDICAL EMERGENCY. Always seek the advice of your physician or other qualified health provider prior to starting any new treatment or with any questions you may have regarding a medical condition.
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