THURSDAY, April 4 (HealthDay News) -- Black Americans are more
likely than other racial/ethnic groups to be interested in
participating in medical research, including when it involves
providing blood or genetic samples, a new study finds.
Now the challenge is to better match that interest with greater
inclusion in clinical trials, experts say.
Researchers talked to nearly 6,000 people in five cities: St.
Louis, Mo.; Davis, Calif.; Ann Arbor, Mich.; New York City; and
Rochester, N.Y. Interviews were held in places such as barbershops,
parks, bus stops, churches, grocery stores, laundromats and health
The results showed that 91 percent of black Americans who were
interviewed expressed an interest in participating in medical
research, compared with 85 percent of whites, 84 percent of
Hispanics and 79 percent of Asians.
Blacks were also more willing than other racial groups to take
part in research even if it might involve providing blood or
genetic samples, staying overnight in a hospital, or granting
access to their medical records, according to the study recently
published online in the
American Journal of Public Health.
"For years, African Americans have been underrepresented in
research," lead investigator Linda Cottler, chair of epidemiology
at the University of Florida College of Public Health and Health
Professions and the College of Medicine, said in a university news
"Reasons have included mistrust of the medical community and
actually not ever being asked to participate in research. Our study
shows that while the participation rate among African Americans has
been very low, their level of interest in research is high," she
Each year, more than 80,000 clinical trials are conducted in the
United States, but less than 2 percent of the population
participate, according to the news release. Women, the elderly,
racial and ethnic minorities, and rural residents are often
underrepresented in these studies.
"If we're not getting the participation of diverse groups when
we're studying medications or interventions, then we don't know how
those treatments will work in real life in different populations,"
Cottler explained. "It's very important for people to have a voice
and be represented."
Another expert discussed the new findings.
"This is a groundbreaking study that demonstrates that members
of minority communities are interested in research, especially
around the diseases and risk factors that are most common in their
families and communities," Dr. Lloyd Michener, chair of community
and family medicine at the Duke University School of Medicine, said
in the news release.
"As many traditional studies struggle with recruitment, this
study suggests that the problem may lie with the lack of awareness
of researchers with the methods of community engagement, rather
than lack of interest or willingness to engage in research among
members of these communities," said Michener, who was not involved
in the study.
The U.S. National Institutes of Health has more about