4301 Connecticut Avenue, NW, Suite 404
Washington, DC 20008
The Genetic Alliance offers information on genetic disorders and the impact of the diagnosis on individuals and families. From the main page, you can search conditions, organizations, and resources.
PO Box 872
Pine, CO 80470-0872
This website provides support services, a newsletter, and information about sex chromosome variations.
1275 Mamaroneck Avenue
White Plains, NY 10605
The March of Dimes provides information on pregnancy and birth defects and gives referrals.
666 Broadway, 8th floor
New York NY, 10012
The National Down Syndrome Society provides information on genetic disorders and listings of genetic counseling services.
330 North Wabash Avenue, Suite 2000
Chicago, IL 60611
On the National Society of Genetic Counselors website, you can learn more about genetic disorders and find a list of genetic counseling services.
2982 South Union St.
Rochester NY, 14624
This nonprofit volunteer organization is a network of families and professionals who are dedicated to offering support to those affected by Trisomy 18, 13, and related chromosomal disorders. You'll find a resource center with fact sheets, a bookstore, membership information, and upcoming events.
11250 West Road, Suite G
Houston TX, 77065
The Turner Syndrome Society creates awareness, promotes research, and provides support for all those affected by this condition.
P.O. Box 268
Lakewood CA, 90714
This society encourages and facilitates communication among families affected by 5p syndrome by raising awareness and providing information.
Last reviewed February 2016 by Kari Kassir, MD
Please be aware that this information is provided to supplement the care provided by your physician. It is neither intended nor implied to be a substitute for professional medical advice. CALL YOUR HEALTHCARE PROVIDER IMMEDIATELY IF YOU THINK YOU MAY HAVE A MEDICAL EMERGENCY. Always seek the advice of your physician or other qualified health provider prior to starting any new treatment or with any questions you may have regarding a medical condition.
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