Post-polio syndrome (PPS) is a condition that affects
survivors. About 20%-40% of people who recover from polio will later develop PPS. The onset may occur 10-40 years after the initial polio attack.
The exact cause is unknown. It is not due to the original polio virus itself.
Instead, the syndrome is due to nerve and muscle damage that may have been caused by the original infection.
Factors that may increase your chance of developing PPS include: Previous polio attackSevere original polio attackLater age at onset of infection
Symptoms may include: Slowly progressive muscle weaknessMuscular atrophyMuscle spasmsMuscle painDifficulty swallowing or breathingIntolerance to heat or cold
If the symptoms during the first attack of polio were severe, the symptoms of PPS may also be severe.
You will be asked about your symptoms and medical history. A neuromuscular exam may also be done. PPS may be hard to diagnose because symptoms come and go. The symptoms may also overlap with other diseases.
Testing often involves electromyography. This measures how well your nerves and muscles are communicating.
Images may be taken of your bodily structures. This can be done with an MRI scan.
Your bodily fluids may be tested. This can be done with:
biopsyLumbar puncture to assess the cerebrospinal fluid that surrounds the spinal cord and brain
Treatment focuses on managing symptoms. The goals are to: Prevent overuse of weak musclesPrevent disuse, atrophy, and weaknessProtect joints from weak musclesMaximize functionMinimize discomfort
Treatment may include: Physical therapyOccupational therapySpeech therapyAssistive devicesWeight loss, if overweightMedication to relieve muscle spasms and painOccasionally, surgery to correct deformities that interfere with functionImmunoglobulin—currently being studied to treat PPS
There are no guidelines for preventing PPS. But polio survivors who keep physically fit may have a reduced risk of PPS.
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Post-polio syndrome fact sheet. National Institute of Neurological Disorders and Stroke website. Available at: http://www.ninds.nih.gov/disorders/post_polio/detail_post_polio.htm. Updated April 16, 2014. Accessed September 5, 2014.
What is post-polio syndrome? Post-Polio Health International website. Available at: http://www.post-polio.org/edu/pps.html. Accessed September 5, 2014.
Last reviewed September 2016 by David L. Horn, MD
Please be aware that this information is provided to supplement the care provided by your physician. It is neither intended nor implied to be a substitute for professional medical advice. CALL YOUR HEALTHCARE PROVIDER IMMEDIATELY IF YOU THINK YOU MAY HAVE A MEDICAL EMERGENCY. Always seek the advice of your physician or other qualified health provider prior to starting any new treatment or with any questions you may have regarding a medical condition.
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